TY - JOUR
T1 - Who benefits from diagnostic labels for developmental disorders?
AU - Werkhoven, Sander
AU - Anderson, Joel
AU - Robeyns, Ingrid
N1 - Funding Information:
This paper is based on research financially supported by Utrecht University’s Strategic Theme 'Dynamics of Youth' and has been shaped by discussions with Sarah Durston, Branko van Hulst, Myrte van Lange, Marijana Marelj, Maja Djekovich, and Siri Noordermeer. In addition, the paper has benefitted greatly from the authors' participation in the Research Network 'Ethics of Autism' Network, funded by the Research Foundation – Flanders (FWO).
Publisher Copyright:
© 2022 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press.
PY - 2022/8
Y1 - 2022/8
N2 - The number of diagnoses of developmental disorders is on the rise and the use of labels for developmental disorders, such as attention-deficit/hyperactivity disorder and autism spectrum disorder, is widening. Diagnostic labels can play an important role in helping those who display atypical behaviour and their caregivers to cope with associated challenges and, possibly, to get treatment. But these labels are increasingly contested and associated with a variety of harmful effects. In this paper, we analyze the role diagnostic labels can play in four different contexts (scientific, therapeutic, social, and administrative) and identify what various stakeholders stand to gain or lose with continued, expanded, or abolished use of those labels. Our analysis reveals labels serve different purposes in each of these contexts, benefitting different stakeholders. Any overall evaluation, critique, or defence of labels needs to consider the interests of all stakeholders in these contexts
AB - The number of diagnoses of developmental disorders is on the rise and the use of labels for developmental disorders, such as attention-deficit/hyperactivity disorder and autism spectrum disorder, is widening. Diagnostic labels can play an important role in helping those who display atypical behaviour and their caregivers to cope with associated challenges and, possibly, to get treatment. But these labels are increasingly contested and associated with a variety of harmful effects. In this paper, we analyze the role diagnostic labels can play in four different contexts (scientific, therapeutic, social, and administrative) and identify what various stakeholders stand to gain or lose with continued, expanded, or abolished use of those labels. Our analysis reveals labels serve different purposes in each of these contexts, benefitting different stakeholders. Any overall evaluation, critique, or defence of labels needs to consider the interests of all stakeholders in these contexts
KW - Classification
KW - Illness
UR - http://www.scopus.com/inward/record.url?scp=85125107194&partnerID=8YFLogxK
U2 - 10.1111/dmcn.15177
DO - 10.1111/dmcn.15177
M3 - Review article
SN - 0012-1622
VL - 64
SP - 944
EP - 949
JO - Developmental Medicine and Child Neurology
JF - Developmental Medicine and Child Neurology
IS - 8
ER -