Perceptions of adolescent survivors of burn injuries and their parents of the health-related quality of life outcomes

R. Pan, L.C. Nascimento, L.A. Rossi, Els Vandermeulen, R. Geenen, N.E.E. Van Loey

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Abstract

Aim: This study compared the self-reported Health-related
Quality of Life (HRQoL) of the adolescents survivors of burn injury
and the proxy estimation of their mothers and fathers at six and
18 months post burn injuries. Methods: Children with burns
(8-18 years old) attending one of the seven burn centers in the
Netherlands and Belgium and their both parents were invited to
participate. A total of 89 adolescents aged 11 years or older filled
out the American Burn Association/Shriners Hospitals for Children
Burn Outcomes Questionnaire (BOQ) at six months and 18 months
post burn injury. Descriptive analysis were done and correlations
between results of the adolescents, mothers and fathers were established.
Results:Overall, the physical functioning scores were
shown to be optimal in almost all participants (99%) and across
the three informants. Adolescents reported better optimal scores
than their fathers and –more pronounced– their mothers at most
of the subscales, but on average the correlations were medium to
high. Only the subscale ‘appearance’ showed a lower correlations
between the adolescents and their parents, whereas both parents
had medium to high inter-correlations. Statistically significant differences
between the adolescent and the mother were found for the
subscales ‘appearance’, ‘family disruption’ and ‘parental concern’ at
six months. Conclusion: In general, the parents had congruent
perceptions of the adolescent’s functioning. The reported scores
of the three informants were quite similar, but mothers tended to
report worse HRQoL than fathers and their children on the most
of the subscales of the BOQ. It suggests that the proxy estimation
can be used when the adolescents cannot provide the assessment
themselves.
Original languageEnglish
Pages (from-to)80-81
JournalRevista Brasileira de Queimaduras
Volume14
Issue number1
Publication statusPublished - Jan 2015

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