Is Being “Paid to Endure” Compatible With Autonomy? Paid Research Participation and Five (Rather Than Four) Goods of Work

Jilles Smids, Sven Nyholm

    Research output: Contribution to journalArticleAcademicpeer-review

    Abstract

    In his article, Erik Malmqvist (2019) discusses whether it
    is a good idea to regulate participation in phase 1 clinical
    trials as work, thus turning the practice of making a living by being a research subject into a job. Specifically,
    Malmqvist investigates whether this would qualify as
    meaningful work, based on what Gheaus and Herzog
    call the four “goods of work”: excellence, social contribution, community, and social recognition. In related
    research that synthesizes both philosophical and empirical literature on meaningful work, we have recently
    identified five aspects of meaningful work, the first four
    of which broadly overlap with Gheaus and Herzog’s
    goods of work (Smids et al. under review). The missing
    element in Gheaus and Herzog’s picture—and therefore
    also in Malmqvist’s main argument—is autonomy. In the
    following, we first argue that autonomy should be
    included among the goods of work. We then augment
    Malmqvist’s argument by exploring how including
    autonomy among the goods of work affects whether
    being a paid research subject can qualify as meaningful work
    Original languageEnglish
    Pages (from-to)41-43
    Number of pages3
    JournalThe American Journal of Bioethics
    Volume19
    Issue number9
    DOIs
    Publication statusPublished - 2 Sept 2019

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